Next Stage Consulting is pleased to be managing the search for the President and CEO of the Lupus Foundation of America, North Carolina Chapter, which has its headquarters in Charlotte, NC.

Position Description: President & CEO

Client: The Lupus Foundation of America, North Carolina Chapter
Location: 4530 Park Rd Suite 302, Charlotte, NC 28209
Founded: 1988
Direct Reports: 2 full-time, 1 contractor
Reports To:  Board of Directors

The Lupus Foundation of America, North Carolina Chapter — Organizational Description

The LFANC is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

The LFANC is an independent 501(c)3 headquartered in Charlotte, North Carolina from where it serves the entire state of North Carolina.  The LFANC is the center of excellence for those affected by lupus, bridging patients, their families, caregivers, and the medical community.

Lupus is an unpredictable and misunderstood chronic autoimmune disease that can ravage any organ of the body. It is difficult to diagnose, hard to live with, and a challenge to treat. Lupus is a cruel mystery because it is hidden from view and undefined, has a range of symptoms, comes out of nowhere, and has no known cause and no known cure. Lupus is debilitating and destructive, and can be fatal, yet research on lupus remains underfunded relative to its scope and devastation. The LFANC works to accelerate the pace of medical research on lupus and find new means for managing the disease. It is estimated that 1.5 million people in the United States live with lupus, with approximately 45,000 living in North Carolina alone.  The impact of lupus on our nation is profound; therefore, our efforts to mitigate its impact must be meaningful, ongoing and strategic.

Recent Milestones
Founded in 1988, the Lupus Foundation of America, Piedmont Chapter served Charlotte and the surrounding region for 25 years before merging with the Lupus Foundation of America, Winston-Triad Chapter to form the North Carolina Chapter.   The LFANC is the only statewide lupus organization in North Carolina.

In late 2015, the LFANC completed a strategic plan with the help of Lee Institute.  The chapter’s vision is to be a center of excellence for those affected by lupus, bridging patients, their families, caregivers and the medical community.  LFANC’s leadership has embraced the Chapter’s role as the leader in patient and caregiver support, services and education.  This commitment forms an exciting framework to guide the development of new programs and supports into the future.

The Role
The Lupus Foundation of America, North Carolina Chapter (LFANC) is seeking an energetic, experienced nonprofit professional to serve as its President & CEO.  The organization’s board of directors is seeking an entrepreneurial spirit with an established and successful track record as a senior member of an organization with similar scope, complexity and size.

Duties and Responsibilities:

Management & Leadership

  • Serves as the face of the Chapter, compellingly articulating the Chapter’s vision to various audiences
  • Provides leadership and internal direction to ensure effective Chapter management
  • Defines the organization’s long-term goals and strategic focus in partnership with the Board of Directors, and implements strategic plans and annual operating plans
  • Works in partnership with the Board to set and accomplish the organization’s mission and vision

Human Resources (Paid and Volunteer)

  • Creates an organizational environment of distributed leadership in which staff and volunteers are empowered, feel valued and are regularly recognized for their contributions
  • Provides overall management of the human resources (paid and volunteer) function, including supervision and a performance appraisal system
  • Incorporates volunteers in human resources and program planning

 Fiscal Management

  • Prepares a balanced annual budget, monitors revenue and expenses, and reports regularly to the Board of Directors
  • Ensures that fiscal management complies with all legal and grant requirements, and is in keeping with sound financial practices of the nonprofit community

Fund Development

  • Provides overall leadership in fund development and all categories of fundraising, including grants, individual contributions, foundation and corporate giving, special events, and in-kind donations
  • Establishes and implements an annual fund development plan with fundraising goals, strategies, action items, timelines, and assigned responsibilities
  • Participates directly in fundraising activities, including identifying and meeting with donors and prospective donors to generate support.
  • Provides direction and supports board member involvement in fund development

Program Oversight

  • Assesses the needs of the organization, its clients and other constituencies, and develops new services, programs or projects that will meet those needs
  • Develops and implements methods for program evaluation, reporting on progress to key audiences

Community Relations

  • Provides leadership to build and maintain strong and positive relationships with community groups, government agencies, and other stakeholders
  • Is sensitive and responsive to the increasing cultural diversity of the state and the unique attributes of the patient population served

Marketing and Communications

  • Provides overall staff leadership in the areas of market research, market planning, program development, promotion, and public relations
  • Develops and maintains positive relationship with the media
  • Oversees preparation and creation of all collateral materials with input from the national office.

The ideal candidate would have the following capabilities and qualities:

  • Demonstrated experience in identifying, soliciting, and cultivating funding from individuals, corporations and foundations.
  • Significant fundraising experience and accomplishments (particularly in the areas of corporate giving and special events).
  • Knowledge and experience in program oversight.
  • Proven ability to provide leadership and inspiration to staff and volunteers.
  • Demonstrated excellence in communications and interpersonal skills.
  • Demonstrated track record in financial management.
  • Experience in a disease-related nonprofit and/ or knowledge of lupus is a significant asset but not a requirement.
  • Bachelor’s degree required (Certified Fund Raising Executive – CFRE preferred).

Salary will be competitive and commensurate with experience. Health and retirement benefits offered.

To Apply
The Lupus Foundation of America, North Carolina Chapter is an Equal Opportunity Employer committed to inclusive hiring and dedicated to diversity in its work and staff. Employment decisions are made without regard to race, color, religion, gender, sex, national origin, physical or mental disability, age, sexual orientation, veteran status, or any other characteristic protected by applicable state or federal law. The Lupus Foundation of America, North Carolina Chapter encourages candidates of all groups and communities to apply for this position.

Beginning March 21, 2017, all inquiries, nominations and applications are to be directed via email to Next Stage Consulting:  Applications should include a cover letter and CV.  Please indicate in the subject line of your email the position and organization to which you are applying and where you learned of the opportunity. NO PHONE CALLS PLEASE.

Please note that only those candidates invited for screening will be contacted.